Here is the fourth installment in the series on the above article. If you’re wondering what is going on in this series, you can find installment #1, #2, and #3 by clicking on those hotlinks and catch yourself up! It’s a really good one! This fourth post will be on tics, a topic near and dear to me, because someone I love is diagnosed with Tourette’s Syndrome, my hubby “G”. So I’ll throw in a few of “G”s comments and my own observations having watched him for 13 years.
That 17 year old girl obviously isn’t “G”, but you can see how difficult a simple task like doing a pen and paper assignment can be. And remember that each of those tics is preceded by an “itch” to move/make noise. It’s a wonder she can concentrate at all!
Just a few stories and observations from life with tics:
“G” has a hard time sitting for portraits, because his head moves a lot. He’s had several photographers yell at home, “Stay still!” or something similar.
He has a hard time getting strangers to quit talking to him, because, as I said, he’s a very agreeable fellow; they tend to think he’s encouraging them to keep talking! On the flip side, everyone thinks he’s a very good listener!
He is super bummed about VR gaming. He loves video games, but because the technology is currently in headset form, his tics prevent him from being able to use it. The tics make the picture jumpy.
When he was playing football, before each game he would introduce himself with medical history to the refs, so they wouldn’t call him for trying to distract the other team.
The tics can completely “take over” his voice if it’s not necessary for him to be talking or if what he’s trying to say isn’t super important.
The tics can also evolve and change somewhat. I’ve seen “G”s go into his shoulder more and less the neck for several months at a time and then migrate back to the neck.
*Disclaimer*: All the above has been shared with permission from “G”, who says, “This is why we’re married: so you can use me in your experiments.” Ok, we may be married for other reasons too, but I do appreciate his willingness to participate in all my “experiments.” ❤ you, “G”!
That’s all for the jerky movements. Next up: non-jerky movements including tremor and dystonia.